ESID Affiliated Societies
The International Nursing Group for Immunodeficiencies (INGID) was formed in 1994 by nurses who were working with children and adults diagnosed with primary immunodeficiency disorders.
The aims of INGID are to improve and extend the quality of nursing care of patients with primary immune deficiencies, and to increase the awareness and understanding of primary immunodeficiencies amongst nurses.
This is being achieved by:
- Forming international networks of nurses working with patients who have immune deficiencies in order to share knowledge, experience, information, and research.
- Creating a base within the specialty for international collaboration between nurses in research/quality assurance projects.
- Working closely with ESID (the European Society for Immunodeficiencies), IPOPI (the International Patient Organisation for Primary Immunodeficiencies), EFIS (the European Federation of Immunology Societies), and with others who have an interest in primary immunodeficiency disorders.
- Organising biennial INGID meetings. These are held at the same time and in the same place as the ESID and IPOPI meetings.
IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide
Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.